Aysha had receded in her progression. We are very alarmed. Sunday she was answering simple questions, interacting and able to see. Yesterday and overnight she had uncontrollable laughing spurts and vision totally deteriorated and she was not answering any questions.
So CT scans, EEG and MRI was taken earlier today. Nothing significant on those as the neurologists notice. But in the morning nuero gave her a shot of Ativan, that immediately improved her alertness and improved responsiveness. They stated she suffered from Gelastic seizures. They will continue with further treatment for this disorder. It seems that the neurology department is excruciatingly slow in diagnosis and plan of action. They need to be more proactive and should be telling me what is happening and be aware of her alert levels and progress, instead of us telling them.....
FYI. The onset of this ordeal was not that she fell down and hurt her head. The AVM rupture and the bleeding inside caused her to lose balance and probably fall. This is a congenital defect that had no prior indication and warning of any kind.
Harun, We continue to think positive thoughts and send prayers Aysha's way. I've wanted to talk to you but didn't know when is a good time. Call my cell whenever if you're up to talking.
ReplyDeleteAll the best wishes,
Chris
may Allah keep her well
ReplyDelete