Aysha - 5/27/09

Aysha met with Dr. Alden at Children's Hospital today. He will look at the CT/MRI CDs in detail. He will also confer with other more experienced surgeons to discuss the best plan of action. She will also have to meet with neuro-opthomologist to check into eye/pupil movement issues.
Aysha will attend a few hours of school a day to finish of her kindergarten year.

Aysha - 5/17/09

We want to give thanks from the bottom of our hearts to all our family, friends, colleagues for Duas, prayers, thoughts, concerns, visits, calls for Aysha. All of your assistance in every way is greatly appreciated. Thank you.
Aysha is progressing well. Doctors decided that she didn't need speech therapy any more, so she has two times a week now in OT/PT. To be clear, she has full mobility albeit some slight unsteadiness at times. Doctors have told her to 'keep both feet on the ground' so to keep her activity limited in the near future.
Aysha has an appointment with the neurosurgeon on May 27th to start planning on the surgery. Dr. Alden is associated with Northwestern University and Children's Memorial Hospital. We will have to understand the pros/cons of embolization and radiotherapy.

Aysha - 5/10/09

Aysha is back home. No incidents or major concerns in-route. OT/PT starts Monday at RIC- willowbrook . She is doing well, but gets emotional since she is not being allowed to be as active as she is usually. There is noticeable general weakness and less mobility. Her vision seems to be getting better, she has a patch that is being alternated between eyes.

Aysha - 5/05/09

Aysha is doing well in physical/occupational therapy. They are preparing for discharge tomorrow. We are planning on heading back this Friday or weekend. She will need to start reporting to RIC, so far they are saying it will be outpatient basis. And then we have appointment to meet the neurosurgeon and start discussion and planning on the AVM treatment/surgery.

Aysha - 5/02/09

Aysha is progressing well. She is eating 'mechanical soft' food now. Her first phase rehab is under way, she is working with occupational/physical therapists to bring her mobility back. Rehab doctors will evaluate her next week to assess where she will be headed. And how she will need to be transported. If it will be inpatient or outpatient. Most likely it will be Rehabilitation Institute of Chicago for at least a few weeks though. Then the AVM surgery will be planned with doctors in Children's Memorial thereafter.