Aysha 8/23/09

So finally we have a date for procedures to start on 9/2/09. Our surgeon has conferred with his colleagues, he has taken MRIs, CT scans to conferences to discuss with experts. What we understand is that open surgery is not possible because of the location of the AVM. So they have planned on embolization to block of the AVM to reduce risk of re-bleeding. Then radio therapy to start the process to thicken the AVM thereafter. The procedure will take place at Children's Memorial Hospital in Chicago, with the radio therapy at Northwestern Hospital. Although the radio therapy session is not confirmed and we need more assurance that this is necessary right away.

http://www.neurosurgery.pitt.edu/endovascular/treatments/avm.html
http://www.irsa.org/avms.html

Aysha - 8/02/09

There is still no schedule for the surgery. Doctors are evaluating the recent MRI and angiogram. After the angiogram, the vascular surgeon gave Lia his perspective. He stated that his view is that embolization is the route to take and IF possible open surgery. We have an appointment with the neurologist with specialization in epilepsy on 8/8/09.
Aysha is doing OK, she did mention headache two nights ago when going to bed. It did not persist for long. We were told if this happens again and persists to take her to Children's' Memorial emergency room. I have not seen any improvement in the vision problems and often mentions double vision, especially when she is looking in angles at things.