Aysha - 7/07/09

Aysha had her appointment with the neuro-opthamologist. They stated that she did have some damage to her optic nerve. But apparently its still functioning well enough that her vision has not degraded much at all. The issues she is having is not able to look at higher areas in her line of vision without tilting her head up. Hopefully this improves with time. There are other problems but thats the main one right now.
On 7/8/09 she will have the arteriogram at 23o PM in Childrens Hospital in Chicago. She is supposed to be fully sedated for the procedure. And possible hospital stay after that.

Aysha - 7/01/09

We received a call from the nuerosurgeon today. Dr. Alden talked to his colleagues. He mentioned there is another possibility now, open surgery to totally remove the AVM is an option now. He stated the gamma knife(radio surgery) is effective maybe up to 80% after a 3 year period, after that another session may be needed. But of course, chances of re-bleeding are still there in the meantime, as it is now. So, MRI/angiogram/ct scans are being scheduled for the next few weeks. And choices to make thereafter on the path to take.

Aysha - 6/16/09

No real updates yet. We had met with Dr. Alden on 5/27 and he said call back in two weeks. He was going to meet with his colleagues, discuss this case and propose the plan of action. He was to speak to Dr. Hunt Batjer, who is the chairperson of the neurology department at Northwestern.
Aysha's is already done with Kindergarten. She has also completed her OT/PT at RIC. We have to make appointment with neuro-ophthalmology to check on the occasional double vision and squinting problems she is having.

Aysha - 5/27/09

Aysha met with Dr. Alden at Children's Hospital today. He will look at the CT/MRI CDs in detail. He will also confer with other more experienced surgeons to discuss the best plan of action. She will also have to meet with neuro-opthomologist to check into eye/pupil movement issues.
Aysha will attend a few hours of school a day to finish of her kindergarten year.

Aysha - 5/17/09

We want to give thanks from the bottom of our hearts to all our family, friends, colleagues for Duas, prayers, thoughts, concerns, visits, calls for Aysha. All of your assistance in every way is greatly appreciated. Thank you.
Aysha is progressing well. Doctors decided that she didn't need speech therapy any more, so she has two times a week now in OT/PT. To be clear, she has full mobility albeit some slight unsteadiness at times. Doctors have told her to 'keep both feet on the ground' so to keep her activity limited in the near future.
Aysha has an appointment with the neurosurgeon on May 27th to start planning on the surgery. Dr. Alden is associated with Northwestern University and Children's Memorial Hospital. We will have to understand the pros/cons of embolization and radiotherapy.

Aysha - 5/10/09

Aysha is back home. No incidents or major concerns in-route. OT/PT starts Monday at RIC- willowbrook . She is doing well, but gets emotional since she is not being allowed to be as active as she is usually. There is noticeable general weakness and less mobility. Her vision seems to be getting better, she has a patch that is being alternated between eyes.

Aysha - 5/05/09

Aysha is doing well in physical/occupational therapy. They are preparing for discharge tomorrow. We are planning on heading back this Friday or weekend. She will need to start reporting to RIC, so far they are saying it will be outpatient basis. And then we have appointment to meet the neurosurgeon and start discussion and planning on the AVM treatment/surgery.